Pulmonary fibrosis is considered sporadic when there are no known relatives with the diagnosis. When two or more blood relatives are affected, this is considered familial pulmonary fibrosis (FPF). It's estimated that as many as 20% of cases of ILD are familial. Research about this type of PF is underway. | Pulmonary Fibrosis Foundation
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Pulmonary fibrosis is considered sporadic when there are no known relatives with the diagnosis. When two or more blood relatives are affected, this is considered familial pulmonary fibrosis (FPF). It's estimated that as many as 20% of cases of ILD are familial. Research about this type of PF is underway. | Pulmonary Fibrosis Foundation
5.2K views7 months ago
FacebookPulmonary Fibrosis Foundation
Familial ILD and Genetics Webinar
52:33
Familial ILD and Genetics Webinar
900 viewsMar 14, 2018
YouTubePulmonary Fibrosis Foundation
❌ You are not guaranteed to get it. In this clip from our recent “Genetics and ILD” webinar, Dr. Scott Matson explains a little bit about genetics and pulmonary fibrosis. When it comes to genetic risks, he explains that not every person with a familial risk will get it. Further, it takes decades to develop. Head over to YouTube to watch the full 60-minute webinar! It’s fascinating 💡 | Pulmonary Fibrosis Foundation
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❌ You are not guaranteed to get it. In this clip from our recent “Genetics and ILD” webinar, Dr. Scott Matson explains a little bit about genetics and pulmonary fibrosis. When it comes to genetic risks, he explains that not every person with a familial risk will get it. Further, it takes decades to develop. Head over to YouTube to watch the full 60-minute webinar! It’s fascinating 💡 | Pulmonary Fibrosis Foundation
3.9K views6 months ago
FacebookPulmonary Fibrosis Foundation
What Is Pulmonary Fibrosis?
What Is Pulmonary Fibrosis?
Jun 10, 2021
pulmonaryfibrosis.org
Familial pulmonary fibrosis - live explanation (Top Lung Health)
25:23
Familial pulmonary fibrosis - live explanation (Top Lung Health)
200 viewsNov 27, 2022
YouTubeDr. Stefan Cristian Stanel
What is a clinical trial and why should you participate? You can be part of finding a cure for pulmonary fibrosis. In our newest Life With Pulmonary Fibrosis video, pulmonologist Dr. Joyce Lee of University of Colorado Anschutz Medical Campus addresses safety concerns and describes the four phases of clinical trials. PF patient and support group leader, Mark McCormick, encourages patients to get involved in as many research studies as possible. The PFF offers resources, including an online Clini
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What is a clinical trial and why should you participate? You can be part of finding a cure for pulmonary fibrosis. In our newest Life With Pulmonary Fibrosis video, pulmonologist Dr. Joyce Lee of University of Colorado Anschutz Medical Campus addresses safety concerns and describes the four phases of clinical trials. PF patient and support group leader, Mark McCormick, encourages patients to get involved in as many research studies as possible. The PFF offers resources, including an online Clini
9.9K viewsNov 26, 2019
FacebookPulmonary Fibrosis Foundation
Understanding Pulmonary Fibrosis: The Basics - Dr. Lawrence Homik - Canadian Pulmonary Fibrosis Foundation
Understanding Pulmonary Fibrosis: The Basics - Dr. Lawrence Homik - Canadian Pulmonary Fibrosis Foundation
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cpff.ca
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💡🫁🤔 What DO we know about idiopathic pulmonary fibrosis? Dr. Amy Case explains! | Pulmonary Fibrosis Foundation
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FacebookPulmonary Fibrosis Foundation
1:45
The disease that takes your breath away. Pulmonary fibrosis (PF) is a process that causes lung scarring, in which fibrotic tissue blocks the movement of oxygen from inside the tiny air sacs in the lungs into the bloodstream. The word “pulmonary” means lung and the word “fibrosis” means scar tissue— similar to scars that form on the skin from an old injury or surgery. 💙💚 At the Pulmonary Fibrosis Foundation (PFF), we are here to guide, support, and empower you at every step of your journey. Fro
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2:06
Pulmonary fibrosis changes everything. But you don’t have to face this journey alone. 💙💚 The PFF’s new 5-year strategic plan, THE PFF IS ME, was built by our community, for our community. And we invite you to read all about it, and join us as we make this vision a reality. Read “The PFF Is Me” and watch the full version of this video. | Pulmonary Fibrosis Foundation
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Our next Life With Pulmonary Fibrosis video is here! People living with PF can find relief with palliative care. Palliative care is an approach to managing the symptoms experienced by people affected by a serious illness to help them achieve their best quality of life. It also addresses advance care planning so that caregivers and family members know what kind of care their loved ones want if they become unable to speak for themselves. Palliative care is different from hospice care and can begin
17K viewsJul 18, 2018
FacebookPulmonary Fibrosis Foundation
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Telomere Pathway Mutations in Familial Interstitial Pneumonia | Justin Hewlett, MD
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