News

Navigating my newborn’s CF diagnosis during the height of the COVID-19 lockdown was one of our hardest moments — yet it was only the beginning of a journey filled with unexpected joy and hope.
Living with cystic fibrosis while facing homelessness has tested me in every way. However, through it all, I’ve found strength, purpose, and the unshakable belief that I must keep going — for myself ...
An advisory panel of the U.S. Food & Drug Administration (FDA) said today it did not have sufficient clinical trial data to recommend approval of liprotamase, a non-porcine pancreatic enzyme therapy ...
Proposed cuts to Medicaid and the ACA marketplace will rob people with cystic fibrosis of critical health coverage needed to ...
After seeing the impact of my sister’s cystic fibrosis throughout my childhood, my late CF diagnosis, while difficult, has brought healing, strength, and a renewed sense of purpose to my life.
The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...
Grief is just one of the many emotions we all experience in life that makes us human. It is not linear. Some days you may feel like the world is caving in around you, while other days the weight is ...
Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...
When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes. I thought I ...
Proposed legislation has the potential to revitalize the global marketplace for novel antibiotics, bringing urgently needed medicines for drug-resistant infections to patients. Today, the Cystic ...
Clarametyx’s novel therapy aims to disrupt bacterial biofilms, one of the primary causes of antibiotic resistance, thereby potentially increasing the effectiveness of existing treatments in fighting a ...
Kendall is the older sister of Claire, who lost her 24-year battle with cystic fibrosis in June 2020. A graduate of Louisiana State University, Kendall now works as chief operating officer for her ...